Dufresne, H. et al. 2023. The Ectodermal Dysplasias-Burden of Disease Score: Development and Validation of an Ectodermal Dysplasia Family/Parental Burden Score. Acta Dermato-Venereologica. 103, (Aug. 2023), adv5203. DOI:https://doi.org/10.2340/actadv.v103.5203.