Cancer patients’ interest in participating in cancer rehabilitation

Authors

  • Emma Ohlsson-Nevo Department of Surgery, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Faculty of Medicine and Health, University Health Care Research Center, Örebro University, Örebro, Sweden
  • Ingrid Alkebro Department of Oncology, Örebro University Hospital, Örebro, Sweden
  • Johan Ahlgren Department of Oncology, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Regional Oncological Centre Uppsala-Örebro, Uppsala, Sweden

DOI:

https://doi.org/10.1080/0284186X.2019.1633017

Abstract

Introduction: Rehabilitation for cancer patients aims at preventing and reducing the physical, mental, social and existential consequences of a cancer disease and its treatment. The aim of this study is to describe the patients’ self-perceived interest in participating in cancer rehabilitation (CR).

Material and methods: A total of 1179 cancer patients, diagnosed with 28 different cancer diagnoses, from November 2015 to October 2016, were identified via the national cancer quality registers. A questionnaire was developed for the purpose of this study, the Cancer Rehabilitation Interest. The questionnaire comprises 16 different rehabilitation activities. This study describes what activities the patients are interested to participate in.

Results: The response rate was 62% and the final sample comprised 728 patients. The rehabilitation activities wanted by the cancer patients were Psychoeducational support group together with others with the same cancer diagnosis, Open lectures on cancer, Individual weight training with a physiotherapist and Personal support from a social worker. Most interested in cancer rehabilitation were women, younger patients, university educated patients and those who had received their diagnosis ≥12 months prior. Patients with a mandatory educational level had the lowest interest in all suggested activities compared with those having medium or high education.

Conclusions: The interest of cancer rehabilitation of all approached patients in this study were 21%. Most interested were women, young patients, university educated and those who received their diagnosis ≥12 months earlier. About 30% of the participating cancer patients reported an interest of information and supportive groups, physical training and support from a hospital social worker. Patients with low level of education reported a low interest in CR. There are limitations in rehabilitation accessibility and that might affect a person’s motivation to participate in this study.

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Published

2019-12-02

How to Cite

Ohlsson-Nevo, E., Alkebro, I., & Ahlgren, J. (2019). Cancer patients’ interest in participating in cancer rehabilitation. Acta Oncologica, 58(12), 1676–1683. https://doi.org/10.1080/0284186X.2019.1633017