Extent of prostate cancer cases not registered in The National Cancer Register of Sweden and consequences for estimates of prostate cancer incidence and mortality
DOI:
https://doi.org/10.2340/ao.v65.45596Downloads
References
Holmberg L, Robinson D, Sandin F, Bray F, Linklater KM, Klint A, et al. A comparison of prostate cancer survival in England, Norway and Sweden: a population-based study. Cancer Epidemiol. 2012;36:e7–12.
https://doi.org/10.1016/j.canep.2011.08.001 DOI: https://doi.org/10.1016/j.canep.2011.08.001
Bratt O, Carlsson S, Fransson P, Thellenberg Karlsson C, Stranne J, Kindblom J. The Swedish national guidelines on prostate cancer, part 1. Scand J Urol. 2022;56:265–73.
https://doi.org/10.1080/21681805.2022.2094462 DOI: https://doi.org/10.1080/21681805.2022.2094462
Vaccarella S, Li M, Bray F, Kvale R, Serraino D, Lorenzoni V, et al. Prostate cancer incidence and mortality in Europe. BMJ. 2024;386:e077738.
https://doi.org/10.1136/bmj-2023-077738 DOI: https://doi.org/10.1136/bmj-2023-077738
Orrason AW, Garmo H, Styrke J, Dickman PW, Stattin P. Relative survival and cause-specific survival in men with prostate cancer. Am J Epidemiol. 2021;190:2053–63.
https://doi.org/10.1093/aje/kwab146 DOI: https://doi.org/10.1093/aje/kwab146
Van Hemelrijck M, Wigertz A, Sandin F, Garmo H, Hellström K, Fransson P, et al. Cohort profile: the National Prostate Cancer Register of Sweden. Int J Epidemiol. 2013;42:956–67.
https://doi.org/10.1093/ije/dys068 DOI: https://doi.org/10.1093/ije/dys068
Westerberg M, Holm L, Garmo H, Stattin P, Gedeborg R. Cohort profile update: NPCR and PCBaSe. Int J Epidemiol. 2025;54:dyaf172.
https://doi.org/10.1093/ije/dyaf172 DOI: https://doi.org/10.1093/ije/dyaf172
Van Hemelrijck M, Ventimiglia E, Robinson D, Gedeborg R, Holmberg L, Stattin P, et al. Population-based estimates of age and comorbidity specific life expectancy. BMC Med Inform Decis Mak. 2022;22:35.
https://doi.org/10.1186/s12911-022-01766-0 DOI: https://doi.org/10.1186/s12911-022-01766-0
Ventimiglia E, Gedeborg R, Orrason AW, Zaurito P, Garmo H, Stattin P, et al. Comorbidity indices and life expectancy in prostate cancer. Scand J Urol. 2025;60:105–7.
https://doi.org/10.2340/sju.v60.43810 DOI: https://doi.org/10.2340/sju.v60.43810
Barlow L, Westergren K, Holmberg L, Talbäck M. Completeness of the Swedish Cancer Register. Acta Oncol. 2009;48:27–33.
https://doi.org/10.1080/02841860802247664 DOI: https://doi.org/10.1080/02841860802247664
Orrason AW, Scilipoti P, Garmo H, Gedeborg R, Styrke J, Westerberg M. Adherence to prostate cancer guidelines. Scand J Urol. 2025;60:50–8.
https://doi.org/10.2340/sju.v60.43107 DOI: https://doi.org/10.2340/sju.v60.43107
Stattin P. Improving cancer care using guidelines and quality registers. Scand J Urol. 2024;59:190–2.
https://doi.org/10.2340/sju.v59.42272 DOI: https://doi.org/10.2340/sju.v59.42272
Johansson ALV, Kønig SM, Larønningen S, Engholm G, Kroman N, Seppä K, et al. Have the recent advancements in cancer therapy and survival benefitted patients of all age groups across the Nordic countries? NORDCAN survival analyses 2002–2021. Acta Oncol. 2024;63:179–91.
https://doi.org/10.2340/1651-226X.2024.35094 DOI: https://doi.org/10.2340/1651-226X.2024.35094
Lundberg F, Robinson D, Bratt O, Fallara G, Lambe M, Johansson ALV. Time trends in the use of curative treatment in men 70 years and older with nonmetastatic prostate cancer. Acta Oncol. 2024;63:95–104.
https://doi.org/10.2340/1651-226X.2024.26189 DOI: https://doi.org/10.2340/1651-226X.2024.26189
Strömberg U, Bonander C, Garmo H, Lambe M, Stattin P, Bratt O. Sociodemographic disparities in incidence rates of advanced and low-risk prostate cancer as a proxy for diagnostic activity. Acta Oncol. 2025;64:677–84.
https://doi.org/10.2340/1651-226X.2025.43399 DOI: https://doi.org/10.2340/1651-226X.2025.43399
Larsen IK, Småstuen M, Johannesen TB, Langmark F, Parkin DM, Bray F, et al. Data quality at the Cancer Registry of Norway. Eur J Cancer. 2009;45:1218–31.
https://doi.org/10.1016/j.ejca.2008.10.037 DOI: https://doi.org/10.1016/j.ejca.2008.10.037
Sigurdardottir LG, Jonasson JG, Stefansdottir S, Jonsdottir A, Olafsdottir GH, Olafsdottir EJ, et al. Data quality at the Icelandic Cancer Registry. Acta Oncol. 2012;51:880–9.
https://doi.org/10.3109/0284186X.2012.698751 DOI: https://doi.org/10.3109/0284186X.2012.698751
Additional Files
Published
How to Cite
License
Copyright (c) 2026 Eugenio Ventimiglia, Hans Garmo, Rolf Gedeborg, Mats Ahlberg, Armando Galdieri, Andri Wilberg Orrason, Lars Holmberg, Pär Stattin, David Robinson

This work is licensed under a Creative Commons Attribution 4.0 International License.
