Extent of prostate cancer cases not registered in The National Cancer Register of Sweden and consequences for estimates of prostate cancer incidence and mortality

Authors

DOI:

https://doi.org/10.2340/ao.v65.45596

Downloads

Download data is not yet available.

References

Holmberg L, Robinson D, Sandin F, Bray F, Linklater KM, Klint A, et al. A comparison of prostate cancer survival in England, Norway and Sweden: a population-based study. Cancer Epidemiol. 2012;36:e7–12.

https://doi.org/10.1016/j.canep.2011.08.001 DOI: https://doi.org/10.1016/j.canep.2011.08.001

Bratt O, Carlsson S, Fransson P, Thellenberg Karlsson C, Stranne J, Kindblom J. The Swedish national guidelines on prostate cancer, part 1. Scand J Urol. 2022;56:265–73.

https://doi.org/10.1080/21681805.2022.2094462 DOI: https://doi.org/10.1080/21681805.2022.2094462

Vaccarella S, Li M, Bray F, Kvale R, Serraino D, Lorenzoni V, et al. Prostate cancer incidence and mortality in Europe. BMJ. 2024;386:e077738.

https://doi.org/10.1136/bmj-2023-077738 DOI: https://doi.org/10.1136/bmj-2023-077738

Orrason AW, Garmo H, Styrke J, Dickman PW, Stattin P. Relative survival and cause-specific survival in men with prostate cancer. Am J Epidemiol. 2021;190:2053–63.

https://doi.org/10.1093/aje/kwab146 DOI: https://doi.org/10.1093/aje/kwab146

Van Hemelrijck M, Wigertz A, Sandin F, Garmo H, Hellström K, Fransson P, et al. Cohort profile: the National Prostate Cancer Register of Sweden. Int J Epidemiol. 2013;42:956–67.

https://doi.org/10.1093/ije/dys068 DOI: https://doi.org/10.1093/ije/dys068

Westerberg M, Holm L, Garmo H, Stattin P, Gedeborg R. Cohort profile update: NPCR and PCBaSe. Int J Epidemiol. 2025;54:dyaf172.

https://doi.org/10.1093/ije/dyaf172 DOI: https://doi.org/10.1093/ije/dyaf172

Van Hemelrijck M, Ventimiglia E, Robinson D, Gedeborg R, Holmberg L, Stattin P, et al. Population-based estimates of age and comorbidity specific life expectancy. BMC Med Inform Decis Mak. 2022;22:35.

https://doi.org/10.1186/s12911-022-01766-0 DOI: https://doi.org/10.1186/s12911-022-01766-0

Ventimiglia E, Gedeborg R, Orrason AW, Zaurito P, Garmo H, Stattin P, et al. Comorbidity indices and life expectancy in prostate cancer. Scand J Urol. 2025;60:105–7.

https://doi.org/10.2340/sju.v60.43810 DOI: https://doi.org/10.2340/sju.v60.43810

Barlow L, Westergren K, Holmberg L, Talbäck M. Completeness of the Swedish Cancer Register. Acta Oncol. 2009;48:27–33.

https://doi.org/10.1080/02841860802247664 DOI: https://doi.org/10.1080/02841860802247664

Orrason AW, Scilipoti P, Garmo H, Gedeborg R, Styrke J, Westerberg M. Adherence to prostate cancer guidelines. Scand J Urol. 2025;60:50–8.

https://doi.org/10.2340/sju.v60.43107 DOI: https://doi.org/10.2340/sju.v60.43107

Stattin P. Improving cancer care using guidelines and quality ­registers. Scand J Urol. 2024;59:190–2.

https://doi.org/10.2340/sju.v59.42272 DOI: https://doi.org/10.2340/sju.v59.42272

Johansson ALV, Kønig SM, Larønningen S, Engholm G, Kroman N, Seppä K, et al. Have the recent advancements in cancer therapy and survival benefitted patients of all age groups across the Nordic countries? NORDCAN survival analyses 2002–2021. Acta Oncol. 2024;63:179–91.

https://doi.org/10.2340/1651-226X.2024.35094 DOI: https://doi.org/10.2340/1651-226X.2024.35094

Lundberg F, Robinson D, Bratt O, Fallara G, Lambe M, Johansson ALV. Time trends in the use of curative treatment in men 70 years and older with nonmetastatic prostate cancer. Acta Oncol. 2024;63:95–104.

https://doi.org/10.2340/1651-226X.2024.26189 DOI: https://doi.org/10.2340/1651-226X.2024.26189

Strömberg U, Bonander C, Garmo H, Lambe M, Stattin P, Bratt O. Sociodemographic disparities in incidence rates of advanced and low-risk prostate cancer as a proxy for diagnostic activity. Acta Oncol. 2025;64:677–84.

https://doi.org/10.2340/1651-226X.2025.43399 DOI: https://doi.org/10.2340/1651-226X.2025.43399

Larsen IK, Småstuen M, Johannesen TB, Langmark F, Parkin DM, Bray F, et al. Data quality at the Cancer Registry of Norway. Eur J Cancer. 2009;45:1218–31.

https://doi.org/10.1016/j.ejca.2008.10.037 DOI: https://doi.org/10.1016/j.ejca.2008.10.037

Sigurdardottir LG, Jonasson JG, Stefansdottir S, Jonsdottir A, Olafsdottir GH, Olafsdottir EJ, et al. Data quality at the Icelandic Cancer Registry. Acta Oncol. 2012;51:880–9.

https://doi.org/10.3109/0284186X.2012.698751 DOI: https://doi.org/10.3109/0284186X.2012.698751

Additional Files

Published

2026-04-17

How to Cite

Ventimiglia, E., Garmo, H., Gedeborg, R., Ahlberg, M., Galdieri, A., Orrason, A. W., … Robinson, D. (2026). Extent of prostate cancer cases not registered in The National Cancer Register of Sweden and consequences for estimates of prostate cancer incidence and mortality. Acta Oncologica, 65, 297–300. https://doi.org/10.2340/ao.v65.45596