Patient satisfaction with rehabilitation services following traumatic brain injury: a quality registry study
DOI:
https://doi.org/10.2340/jrm.v56.35115Keywords:
healthcare quality assessment, patient satisfaction, outpatient clinic, primary healthcare, traumatic brain injuryAbstract
Objective: To examine factors associated with patient satisfaction with rehabilitation services received after traumatic brain injury.
Design: Cross-sectional study.
Subjects/Patients: Persons with mild to severe traumatic brain injury (n = 1,375) registered in the “Oslo TBI Registry – Rehabilitation” quality register at Oslo University Hospital from 1 January 2018–31 July 2022.
Methods: Sociodemographics, injury-related variables, patient-reported outcome measures, global functioning, and rehabilitation-related variables were recorded at hospital outpatient visits. The patients reported satisfaction with services received at the outpatient clinic and in primary healthcare at the final follow-up. Multivariable logistic regression models were applied to examine factors associated with patient satisfaction.
Results: Of 316 patients, 83% reported satisfaction with services received at the hospital outpatient clinic. Belief in recovery (odds ratio [OR] = 2.73), shorter time to follow-up (OR = 0.39), and lower symptom burden (OR = 0.96) significantly increased satisfaction. Among 283 patients, 62% reported satisfaction with services in primary healthcare, where belief in recovery (OR = 2.90), shorter time to follow-up (OR = 0.50), higher age (OR = 1.04), and higher number of rehabilitation services received in primary healthcare (OR = 1.32) significantly increased satisfaction.
Conclusion: Across service levels, the strongest associated factors for satisfaction were belief in recovery and shorter time to follow-up, suggesting that timely delivery of traumatic brain injury-related specialized services could increase overall satisfaction.
Downloads
References
Dewan MC. Estimating the global incidence of traumatic brain injury. J Neurosurg 2019; 130: 1080–1097.
https://doi.org/10.3171/2017.10.JNS17352 DOI: https://doi.org/10.3171/2017.10.JNS17352
James SL TA. Global, regional, and national burden of traumatic brain injury and spinal cord injury, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet Neurol 2019; 18: 56–87.
https://doi.org/10.1016/s1474-4422(18)30415-0 DOI: https://doi.org/10.1016/S1474-4422(18)30415-0
Dwyer B, Katz DI. Postconcussion syndrome. Handb Clin Neurol 2018; 158: 163–178.
https://doi.org/10.1016/b978-0-444-63954-7.00017-3 DOI: https://doi.org/10.1016/B978-0-444-63954-7.00017-3
WHO. Rehabilitation. [Webpage] 2024 22.04.2024 [cited 2024 05.08.2024]; Available from: https://www.who.int/news-room/fact-sheets/detail/rehabilitation
Røe C, Sveen U, Alvsåker K, Bautz-Holter E. Post-concussion symptoms after mild traumatic brain injury: influence of demographic factors and injury severity in a 1-year cohort study. Disabil Rehabil 2009; 31: 1235–1243.
https://doi.org/10.1080/09638280802532720 DOI: https://doi.org/10.1080/09638280802532720
Mittenberg W, DiGiulio DV, Perrin S, Bass AE. Symptoms following mild head injury: expectation as aetiology. J Neurol Neurosurg Psychiatry 1992; 55: 200–204.
https://doi.org/10.1136/jnnp.55.3.200 DOI: https://doi.org/10.1136/jnnp.55.3.200
Voormolen DC, Haagsma JA, Polinder S, Maas AIR, Steyerberg EW, Vuleković P, et al. Post-concussion symptoms in complicated vs. uncomplicated mild traumatic brain injury patients at three and six months post-injury: results from the CENTER-TBI study. J Clin Med 2019; 8: 1921.
https://doi.org/10.3390/jcm8111921 DOI: https://doi.org/10.3390/jcm8111921
Machamer J, Temkin N, Dikmen S, Nelson LD, Barber J, Hwang P, et al. Symptom Frequency And Persistence In The First Year After Traumatic Brain Injury: A TRACK-TBI dtudy. J Neurotrauma 2022; 39: 358–370.
https://doi.org/10.1089/neu.2021.0348 DOI: https://doi.org/10.1089/neu.2021.0348
Andelic N, Soberg HL, Berntsen S, Sigurdardottir S, Roe C. Self-perceived health care needs and delivery of health care services 5 years after moderate-to-severe traumatic brain injury. PM R 2014; 6: 1013–1021; quiz 1021.
https://doi.org/10.1016/j.pmrj.2014.05.005 DOI: https://doi.org/10.1016/j.pmrj.2014.05.005
Swaine B, Dassa C, Kone A, Dutil E, Demers L, Trempe C. The PQRS-Montreal: a measure of patients’ perceptions of the quality of rehabilitation services for persons with a traumatic brain injury. Disabil Rehabil 2017; 39: 59–72.
https://doi.org/10.3109/09638288.2016.1140828 DOI: https://doi.org/10.3109/09638288.2016.1140828
Goodrich GW, Lazenby JM. Elements of patient satisfaction: an integrative review. Nurs Open 2023; 10: 1258–1269.
https://doi.org/10.1002/nop2.1437 DOI: https://doi.org/10.1002/nop2.1437
Déry J, Fortin-Bédard N, de Guise É, Lamontagne ME. “I hope it’ll get better… in the end, it didn’t really get better”: a qualitative study of access to specialized rehabilitation services as experienced by adults with persistent MTBI symptoms. Disabil Rehabil 2023; 46: 2414–2423.
https://doi.org/10.1080/09638288.2023.2224084 DOI: https://doi.org/10.1080/09638288.2023.2224084
Manskow US, Arntzen C, Damsgård E, Braine M, Sigurdardottir S, Andelic N, et al. Family members’ experience with in-hospital health care after severe traumatic brain injury: a national multicentre study. BMC Health Serv Res 2018; 18: 951.
https://doi.org/10.1186/s12913-018-3773-7 DOI: https://doi.org/10.1186/s12913-018-3773-7
Anke A, Manskow US, Friborg O, Røe C, Arntzen C. The family experiences of in-hospital care questionnaire in severe traumatic brain injury (FECQ-TBI): a validation study. BMC Health Serv Res 2016; 16: 675.
https://doi.org/10.1186/s12913-016-1884-6 DOI: https://doi.org/10.1186/s12913-016-1884-6
Graff HJ, Christensen U, Poulsen I, Egerod I. Patient perspectives on navigating the field of traumatic brain injury rehabilitation: a qualitative thematic analysis. Disabil Rehabil 2018; 40: 926–934.
https://doi.org/10.1080/09638288.2017.1280542 DOI: https://doi.org/10.1080/09638288.2017.1280542
Toor GK, Harris JE, Escobar M, Yoshida K, Velikonja D, Rizoli S, et al. Long-term health service outcomes among women with traumatic brain injury. Arch Phys Med Rehabil 2016; 97: S54–63.
https://doi.org/10.1016/j.apmr.2015.02.010 DOI: https://doi.org/10.1016/j.apmr.2015.02.010
Statistics Norway. 07459: Population, by region, contents and year. 2024 21.02.2024 [cited 2024 05.08.2024]; Available from: https://www.ssb.no/en/statbank/table/07459/tableViewLayout1/
Tverdal C, Aarhus M, Andelic N, Skaansar O, Skogen K, Helseth E. Characteristics of traumatic brain injury patients with abnormal neuroimaging in Southeast Norway. Inj Epidemiol 2020; 7: 45.
https://doi.org/10.1186/s40621-020-00269-8 DOI: https://doi.org/10.1186/s40621-020-00269-8
Teasdale G, Jennett B. Assessment of coma and impaired consciousness: a practical scale. Lancet 1974; 2: 81–84.
https://doi.org/10.1016/s0140-6736(74)91639-0 DOI: https://doi.org/10.1016/S0140-6736(74)91639-0
King NS, Crawford S, Wenden FJ, Moss NE, Wade DT. The Rivermead Post Concussion Symptoms Questionnaire: a measure of symptoms commonly experienced after head injury and its reliability. J Neurol 1995; 242: 587–592.
https://doi.org/10.1007/bf00868811 DOI: https://doi.org/10.1007/BF00868811
van der Vlegel M, Polinder S, Mikolic A, Kaplan R, von Steinbuechel N, Plass AM, et al. The association of post-concussion and post-traumatic stress disorder symptoms with health-related quality of life, health care use and return-to-work after mild traumatic brain injury. J Clin Med 2021; 10: 2473.
https://doi.org/10.3390/jcm10112473 DOI: https://doi.org/10.3390/jcm10112473
Kroenke K, Spitzer RL, Williams JB. The PHQ-9: validity of a brief depression severity measure. J Gen Intern Med 2001; 16: 606–613.
https://doi.org/10.1046/j.1525-1497.2001.016009606.x DOI: https://doi.org/10.1046/j.1525-1497.2001.016009606.x
Kroenke K, Spitzer RL, Williams JB, Löwe B. The Patient Health Questionnaire Somatic, Anxiety, and Depressive Symptom Scales: a systematic review. Gen Hosp Psychiatry 2010; 32: 345–359.
https://doi.org/10.1016/j.genhosppsych.2010.03.006 DOI: https://doi.org/10.1016/j.genhosppsych.2010.03.006
Spitzer RL, Kroenke K, Williams JB, Lowe B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med 2006; 166: 1092–1097.
https://doi.org/10.1001/archinte.166.10.1092 DOI: https://doi.org/10.1001/archinte.166.10.1092
Teymoori A, Gorbunova A, Haghish FE, Real R, Zeldovich M, Wu YJ, et al. Factorial structure and validity of depression (PHQ-9) and anxiety (GAD-7) scales after traumatic brain injury. J Clin Med 2020; 9: 873.
https://doi.org/10.3390/jcm9030873 DOI: https://doi.org/10.3390/jcm9030873
Weisaeth L. Torture of a Norwegian ship’s crew: the torture, stress reactions and psychiatric after-effects. Acta Psychiatr Scand Suppl 1989; 355: 63–72. DOI: https://doi.org/10.1111/j.1600-0447.1989.tb05255.x
Stoll C, Kapfhammer HP, Rothenhäusler HB, Haller M, Briegel J, Schmidt M, et al. Sensitivity and specificity of a screening test to document traumatic experiences and to diagnose post-traumatic stress disorder in ARDS patients after intensive care treatment. Intensive Care Med 1999; 25: 697–704.
https://doi.org/10.1007/s001340050932 DOI: https://doi.org/10.1007/s001340050932
Wilson L, Boase K, Nelson LD, Temkin NR, Giacino JT, Markowitz AJ, et al. A manual for the Glasgow outcome scale–extended interview. J Neurotrauma 2021; 38: 2435–2446 https://doi.org/10.1089/neu.2020.7527. DOI: https://doi.org/10.1089/neu.2020.7527
Snell DL, Hay-Smith EJ, Surgenor LJ, Siegert RJ. Examination of outcome after mild traumatic brain injury: the contribution of injury beliefs and Leventhal’s common sense model. Neuropsychol Rehabil 2013; 23: 333-362.
https://doi.org/10.1080/09658211.2012.758419. DOI: https://doi.org/10.1080/09658211.2012.758419
Chambers-Richards T, Chireh B, D’Arcy C. Unmet health care needs: factors predicting satisfaction with health care services among community-dwelling Canadians living with neurological conditions. BMC Health Serv Res 2022; 22: 1256.
https://doi.org/10.1186/s12913-022-08611-0 DOI: https://doi.org/10.1186/s12913-022-08611-0
Danielsen K, Bjertnaes OA, Garratt A, Forland O, Iversen HH, Hunskaar S. The association between demographic factors, user reported experiences and user satisfaction: results from three casualty clinics in Norway. BMC Fam Pract 2010; 11: 73.
https://doi.org/10.1186/1471-2296-11-73 DOI: https://doi.org/10.1186/1471-2296-11-73
Hoang MT, Kåreholt I, von Euler M, von Koch L, Eriksdotter M, Garcia-Ptacek S. Satisfaction with stroke care among patients with Alzheimer’s and other dementias: a Swedish register-based study. J Alzheimers Dis 2021; 79: 905–916.
https://doi.org/10.3233/jad-200976 DOI: https://doi.org/10.3233/JAD-200976
Bjertnaes OA. The association between survey timing and patient-reported experiences with hospitals: results of a national postal survey. BMC Med Res Methodol 2012; 12: 13.
https://doi.org/10.1186/1471-2288-12-13 DOI: https://doi.org/10.1186/1471-2288-12-13
Mondloch MV, Cole DC, Frank JW. Does how you do depend on how you think you’ll do? A systematic review of the evidence for a relation between patients’ recovery expectations and health outcomes. CMAJ 2001; 165: 174–179.
Tistad M, Tham K, von Koch L, Ytterberg C. Unfulfilled rehabilitation needs and dissatisfaction with care 12 months after a stroke: an explorative observational study. BMC Neurol 2012; 12: 40.
https://doi.org/10.1186/1471-2377-12-40 DOI: https://doi.org/10.1186/1471-2377-12-40
Pound P, Tilling K, Rudd AG, Wolfe CD. Does patient satisfaction reflect differences in care received after stroke? Stroke 1999; 30: 49–55.
https://doi.org/10.1161/01.str.30.1.49 DOI: https://doi.org/10.1161/01.STR.30.1.49
Quintana JM, González N, Bilbao A, Aizpuru F, Escobar A, Esteban C, et al. Predictors of patient satisfaction with hospital health care. BMC Health Serv Res 2006; 6: 102.
https://doi.org/10.1186/1472-6963-6-102 DOI: https://doi.org/10.1186/1472-6963-6-102
Mikolić A, van Klaveren D, Groeniger JO, Wiegers EJA, Lingsma HF, Zeldovich M, et al. Differences between men and women in treatment and outcome after traumatic brain injury. J Neurotrauma 2021; 38: 235–251. DOI: https://doi.org/10.1089/neu.2021.0116
https://doi.org/10.1089/neu.2020.7228 DOI: https://doi.org/10.1089/neu.2020.7228
Niemeier JP, Perrin PB, Holcomb MG, Rolston CD, Artman LK, Lu J, et al. Gender differences in awareness and outcomes during acute traumatic brain injury recovery. J Womens Health 2014; 23: 573–580.
https://doi.org/10.1089/jwh.2013.4535 DOI: https://doi.org/10.1089/jwh.2013.4535
Published
How to Cite
Issue
Section
Categories
License
Copyright (c) 2024 Camilla G. Hovset, Cecilie Røe, Helene L. Søberg, Cathrine Brunborg, Eirik Helseth, Nada Andelic, Marit V. Forslund
This work is licensed under a Creative Commons Attribution 4.0 International License.
All digitalized JRM contents is available freely online. The Foundation for Rehabilitation Medicine owns the copyright for all material published until volume 40 (2008), as from volume 41 (2009) authors retain copyright to their work and as from volume 49 (2017) the journal has been published Open Access, under CC-BY-NC licences (unless otherwise specified). The CC-BY-NC licenses allow third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material for non-commercial purposes, provided proper attribution to the original work.
From 2024, articles are published under the CC-BY licence. This license permits sharing, adapting, and using the material for any purpose, including commercial use, with the condition of providing full attribution to the original publication.
