Health, functioning and accessibility among spinal cord injury population in Finland: Protocol for the FinSCI study

Authors

  • Susanna Tallqvist
  • Heidi Anttila
  • Mauri Kallinen
  • Eerika Koskinen
  • Harri Hämäläinen
  • Anna-Maija Kauppila
  • Anni Täckman
  • Aki Vainionpää
  • Jari Arokoski
  • Sinikka Hiekkala

DOI:

https://doi.org/10.2340/16501977-2539

Keywords:

spinal cord injury, International Classification of Functioning Disability and Health, data collection, questionnaire design, community survey, methodology.

Abstract

Background and purpose: The purpose of the Finnish Spinal Cord Injury Study (FinSCI) is to identify factors related to the health and functioning of people with spinal cord injury, their challenges with accessibility, and how such factors are interconnected. The International Classification of Functioning, Disability and Health (ICF) is used as a structured framework in the study. Design: Protocol of mixed methods study. Results: Study participants were recruited from all 3 SCI outpatient clinics in Finland. The final target group consists of 1,789 subjects with spinal cord injury. The final questionnaire was formed from 5 different patient-reported instruments. The spinal cord injury-specified instruments are the Spinal Cord Injury Secondary Condition Scale, the Spinal Cord Independence Measure, and the Nottwil Environmental Factors Inventory Short Form. In addition, questions from the following generic instruments were chosen after a selection process: the Patient-Reported Outcomes Measurement Information System, PROMIS®, and the National Study of Health, Well-being and Service, FinSote. Altogether, the final questionnaire covers 64 ICF categories and consists of 151 ICF-linked questions. Conclusion: The formulated questionnaire covers widely different aspects of health, functioning and accessibility. The questionnaire results and subsequent interviews will help in developing care and rehabilitation policies and services for people with spinal cord injury.

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Published

2019-03-19

How to Cite

Tallqvist, S., Anttila, H., Kallinen, M., Koskinen, E., Hämäläinen, H., Kauppila, A.-M., … Hiekkala, S. (2019). Health, functioning and accessibility among spinal cord injury population in Finland: Protocol for the FinSCI study. Journal of Rehabilitation Medicine, 51(4), 273–280. https://doi.org/10.2340/16501977-2539

Issue

Vol. 51 No. 4 (2019)

Section

Original Report

License

Copyright (c) 2019 Susanna Tallqvist, Heidi Anttila, Mauri Kallinen, Eerika Koskinen, Harri Hämäläinen, Anna-Maija Kauppila, Anni Täckman, Aki Vainionpää, Jari Arokoski, Sinikka Hiekkala

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

All digitalized JRM contents is available freely online. The Foundation for Rehabilitation Medicine owns the copyright for all material published until volume 40 (2008), as from volume 41 (2009) authors retain copyright to their work and as from volume 49 (2017) the journal has been published Open Access, under CC-BY-NC licences (unless otherwise specified). The CC-BY-NC licenses allow third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material for non-commercial purposes, provided proper attribution to the original work.
From 2024, articles are published under the CC-BY licence. This license permits sharing, adapting, and using the material for any purpose, including commercial use, with the condition of providing full attribution to the original publication.

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