The Disease Burdens of Self-diagnosed Hidradenitis Suppurativa Patients in Japan: A Cross-sectional Web-based Survey

Authors

  • Koremasa Hayama Division of Cutaneous Science, Department of Dermatology, Nihon University School of Medicine, Tokyo, Japan
  • Masateru Okazaki AbbVie GK, Tokyo, Japan
  • Takeshi Akiyama IQVIA Solutions Japan G.K., Tokyo, Japan
  • Kazuo Morita AbbVie GK, Tokyo, Japan
  • Toshifumi Nomura Department of Dermatology, Institute of Medicine, University of Tsukuba, Tsukuba, Japan

DOI:

https://doi.org/10.2340/actadv.v104.32746

Keywords:

Epidemiology, Hidradenitis suppurativa, Self-reported diagnosed patients, Disease burden, Quality of life, Dermatology Life Quality Index

Abstract

Abstract is missing (Short communication)

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References

Zouboulis CC, Desai N, Emtestam L, Hunger RE, Ioannides D, Juhász I, et al. European S1 guideline for the treatment of hidradenitis suppurativa/acne inversa. J Eur Acad Dermatol Venereol 2015; 29: 619-644.

https://doi.org/10.1111/jdv.12966 DOI: https://doi.org/10.1111/jdv.12966

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https://doi.org/10.1111/1346-8138.15378 DOI: https://doi.org/10.1111/1346-8138.15378

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https://doi.org/10.2340/actadv.v101.1013 DOI: https://doi.org/10.2340/actadv.v101.1013

Kimball AB, Kirby J, Ingram JR, Tran T, Pansar I, Ciaravino V, et al. Burden of hidradenitis suppurativa: a systematic literature review of patient reported outcomes. Dermatol Ther (Heidelb) 2024; 14: 83-98.

https://doi.org/10.1007/s13555-023-01085-w DOI: https://doi.org/10.1007/s13555-023-01085-w

Garg A, Neuren E, Cha D, Kirby JS, Ingram JR, Jemec GBE, et al. Evaluating patients' unmet needs in hidradenitis suppurativa: results from the Global Survey of Impact and Healthcare Needs (VOICE) Project. J Am Acad Dermatol 2020; 82: 366-376.

https://doi.org/10.1016/j.jaad.2019.06.1301 DOI: https://doi.org/10.1016/j.jaad.2019.06.1301

Kokolakis G, Wolk K, Schneider-Burrus S, Kalus S, Barbus S, Gomis-Kleindienst S, et al. Delayed diagnosis of hidradenitis suppurativa and its effect on patients and healthcare system. Dermatology 2020; 236: 421-430.

https://doi.org/10.1159/000508787 DOI: https://doi.org/10.1159/000508787

Theut Riis P, Pedersen OB, Sigsgaard V, Erikstrup C, Paarup HM, Nielsen KR, et al. Prevalence of patients with self-reported hidradenitis suppurativa in a cohort of Danish blood donors: a cross-sectional study. Br J Dermatol 2019; 180: 774-781.

https://doi.org/10.1111/bjd.16998 DOI: https://doi.org/10.1111/bjd.16998

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https://doi.org/10.1111/1346-8138.12881 DOI: https://doi.org/10.1111/1346-8138.12881

Kirby JS, Thorlacius L, Villumsen B, Ingram JR, Garg A, Christensen KB, et al. The Hidradenitis Suppurativa Quality of Life (HiSQOL) score: development and validation of a measure for clinical trials. Br J Dermatol 2020; 183: 340-348.

https://doi.org/10.1111/bjd.18692 DOI: https://doi.org/10.1111/bjd.18692

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Published

2024-08-23

How to Cite

Hayama, K., Okazaki, M., Akiyama, T., Morita, K., & Nomura, T. (2024). The Disease Burdens of Self-diagnosed Hidradenitis Suppurativa Patients in Japan: A Cross-sectional Web-based Survey. Acta Dermato-Venereologica, 104, adv32746. https://doi.org/10.2340/actadv.v104.32746

Issue

Vol. 104 (2024)

Section

Short Communication

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Copyright (c) 2024 Koremasa Hayama, Masateru Okazaki, Takeshi Akiyama, Kazuo Morita, Toshifumi Nomura

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Funding data

  • AbbVie
    Grant numbers Not Applicable