Exploring Social Health in Patients with Atopic Dermatitis: An Observational, Cross-sectional, Questionnaire Based Study on Social Participation and Emotional Support

Authors

  • Esmé Kamphuis Department of Dermatology, University Medical Center Groningen, Groningen, The Netherlands
  • Laura Loman Department of Dermatology, University Medical Center Groningen, Groningen, The Netherlands
  • Marjolein de Bruin-Weller Department of Dermatology, University Medical Center Utrecht, Utrecht, The Netherlands
  • Marie-Louise Schuttelaar Department of Dermatology, University Medical Center Groningen, Groningen, The Netherlands

DOI:

https://doi.org/10.2340/actadv.v105.41129

Keywords:

social health, atopic dermatitis

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References

Drucker AM, Wang AR, Li WQ, Sevetson E, Block JK, Qureshi AA. The Burden of Atopic Dermatitis: Summary of a Report for the National Eczema Association. J Invest Dermatol 2017; 137: 26-30.

https://doi.org/10.1016/j.jid.2016.07.012 DOI: https://doi.org/10.1016/j.jid.2016.07.012

Cella D, Riley W, Stone A, Rothrock N, Reeve B, Yount S et al. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. J Clin Epidemiol 2010; 63: 1179-1194.

https://doi.org/10.1016/j.jclinepi.2010.04.011 DOI: https://doi.org/10.1016/j.jclinepi.2010.04.011

Hahn EA, Devellis RF, Bode RK, Garcia SF, Castel LD, Eisen SV et al. Measuring social health in the patient-reported outcomes measurement information system (PROMIS): item bank development and testing. Qual Life Res 2010; 19: 1035-1044.

https://doi.org/10.1007/s11136-010-9654-0 DOI: https://doi.org/10.1007/s11136-010-9654-0

Pariser DM, Simpson EL, Gadkari A, Bieber T, Margolis DJ, Brown M et al. Evaluating patient-perceived control of atopic dermatitis: design, validation, and scoring of the Atopic Dermatitis Control Tool (ADCT). Curr Med Res Opin 2020; 36: 367-376.

https://doi.org/10.1080/03007995.2019.1699516 DOI: https://doi.org/10.1080/03007995.2019.1699516

Charman CR, Venn AJ, Ravenscroft JC, Williams HC. Translating Patient-Oriented Eczema Measure (POEM) scores into clinical practice by suggesting severity strata derived using anchor-based methods. Br J Dermatol 2013; 169: 1326-1332.

https://doi.org/10.1111/bjd.12590 DOI: https://doi.org/10.1111/bjd.12590

Silverberg JI, Lai JS, Patel KR, Singam V, Vakharia PP, Chopra R et al. Measurement properties of the Patient-Reported Outcomes Information System (PROMIS®) Itch Questionnaire: itch severity assessments in adults with atopic dermatitis. Br J Dermatol 2020; 183: 891-898.

https://doi.org/10.1111/bjd.18978 DOI: https://doi.org/10.1111/bjd.18978

Silverberg JI, Mohawk JA, Cirulli J, Nograles K, Punzalan JC, Kelly KM et al. Burden of Disease and Unmet Needs in Atopic Dermatitis: Results From a Patient Survey. Dermatitis. 2023; 34(2): 135-144.

https://doi.org/10.1089/derm.2022.29015.jsi DOI: https://doi.org/10.1089/derm.2022.29015.jsi

Silverberg JI, Gelfand JM, Margolis DJ, Boguniewicz M, Fonacier L, Grayson MH et al. Patient burden and quality of life in atopic dermatitis in US adults: A population-based cross-sectional study. Ann Allergy Asthma Immunol 2018; 121: 340-347.

https://doi.org/10.1016/j.anai.2018.07.006 DOI: https://doi.org/10.1016/j.anai.2018.07.006

Zuberbier T, Orlow SJ, Paller AS, Taïeb A, Allen R, Hernanz-Hermosa JM et al. Patient perspectives on the management of atopic dermatitis. J Allergy Clin Immunol 2006; 118: 226-232.

https://doi.org/10.1016/j.jaci.2006.02.031 DOI: https://doi.org/10.1016/j.jaci.2006.02.031

Maksimovic N, Zaric M, Bjelica S, Eric Marinkovic J, Jankovic S. Psychosomatic factors of atopic dermatitis exacerbation. Int J Dermatol 2018; 57: 1080-1084.

https://doi.org/10.1111/ijd.14076 DOI: https://doi.org/10.1111/ijd.14076

Shields A, Barg FK, Begolka WS, Sage K, Druby K, Gondo GC et al. Identifying Core Outcome Domains in Chronic Skin Disease Using the Best-Worst Scaling Method. JAMA Dermatol 2024; 160: 441-446.

https://doi.org/10.1001/jamadermatol.2023.6245 DOI: https://doi.org/10.1001/jamadermatol.2023.6245

Terwee CB, Crins MHP, Boers M, de Vet HCW, Roorda LD. Validation of two PROMIS item banks for measuring social participation in the Dutch general population. Qual Life Res 2019; 28: 211-220.

https://doi.org/10.1007/s11136-018-1995-0 DOI: https://doi.org/10.1007/s11136-018-1995-0

Salter A, Fox RJ, Tyry T, Cutter G, Marrie RA. The association of fatigue and social participation in multiple sclerosis as assessed using two different instruments. Mult Scler Relat Disord 2019; 31: 165-172.

https://doi.org/10.1016/j.msard.2019.04.014 DOI: https://doi.org/10.1016/j.msard.2019.04.014

Additional Files

Published

2025-01-08

How to Cite

Kamphuis, E., Loman, L., de Bruin-Weller, M., & Schuttelaar, M.-L. (2025). Exploring Social Health in Patients with Atopic Dermatitis: An Observational, Cross-sectional, Questionnaire Based Study on Social Participation and Emotional Support. Acta Dermato-Venereologica, 105, adv41129. https://doi.org/10.2340/actadv.v105.41129

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