Participation and health-related quality of life in adults with spastic bilateral cerebral palsy and the role of self-efficacy.

Authors

  • Wilma van der Slot
  • Channah Nieuwenhuijsen
  • Rita J.G. van den Berg-Emons
  • Akkelies E. Wensink-Boonstra
  • Henk J. Stam
  • Marij Roebroeck
  • the Transition Research Group South West Netherlands

DOI:

https://doi.org/10.2340/16501977-0555

Keywords:

cerebral palsy, adults, participation, quality of life, self-efficacy, rehabilitation.

Abstract

OBJECTIVE: To assess participation and health-related quality of life in adults with bilateral spastic cerebral palsy, and explore associations with self-efficacy. DESIGN: Cross-sectional study. SUBJECTS: A sample of 56 adults with bilateral spastic cerebral palsy (mean age 36.4 (standard deviation 5.8) years; 62% male). METHODS: Daily activities and social participation (Life Habits 3.0), health-related quality of life (SF-36 Health Survey), demographic and clinical characteristics, and self-efficacy (General Self-Efficacy Scale (GSES-12)) were assessed. Associations were studied using multivariate logistic regression analyses. RESULTS: At least 60% of the sample had difficulties with mobility, recreation and housing, and 44% had difficulty with personal care and employment. They perceived low health-related quality of life for physical functions, but not for mental functions. Corrected for demographic and clinical characteristics, general self-efficacy explained 49% of the variance in outcome on social participation, and the subscale Effort (GSES-12) 32% of the variance for the physical health-related quality of life and 16% of the mental health-related quality of life. CONCLUSION: A significant number of adults with bilateral spastic cerebral palsy encountered difficulties in social participation and had a low perceived health-related quality of life for physical functions. Higher general self-efficacy or a greater willingness to expend effort in achieving behaviour was related to better participation and a higher physical and mental health-related quality of life.

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Published

2010-04-13

How to Cite

van der Slot, W., Nieuwenhuijsen, C., van den Berg-Emons, R. J., Wensink-Boonstra, A. E., Stam, H. J., Roebroeck, M., & the Transition Research Group South West Netherlands. (2010). Participation and health-related quality of life in adults with spastic bilateral cerebral palsy and the role of self-efficacy. Journal of Rehabilitation Medicine, 42(6), 528–535. https://doi.org/10.2340/16501977-0555

Issue

Vol. 42 No. 6 (2010)

Section

Original Report

License

All digitalized JRM contents is available freely online. The Foundation for Rehabilitation Medicine owns the copyright for all material published until volume 40 (2008), as from volume 41 (2009) authors retain copyright to their work and as from volume 49 (2017) the journal has been published Open Access, under CC-BY-NC licences (unless otherwise specified). The CC-BY-NC licenses allow third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material for non-commercial purposes, provided proper attribution to the original work.
From 2024, articles are published under the CC-BY licence. This license permits sharing, adapting, and using the material for any purpose, including commercial use, with the condition of providing full attribution to the original publication.

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