Validation of the International Classification of Functioning, Disability and Health Core Sets for traumatic brain injury from Australian community patient perspectives
DOI:
https://doi.org/10.2340/16501977-2860Keywords:
brain injury, traumatic, rehabilitation, qualitative research, focus groups, self-reportAbstract
Objective: To examine the validity of the Comprehensive and Brief International Classification of Functioning, Disability and Health (ICF) Core Sets for Traumatic Brain Injury for patients with traumatic brain injury living in the community in Australia.
Design: Qualitative methodology using focus groups and individual interviews.
Patients: Community-dwelling adult persons with traumatic brain injury.
Methods: Patients sustaining traumatic brain injury with post-traumatic amnesia between September 2009 and August 2013, selected from the Royal Melbourne Hospital Trauma Registry, were invited to participate in the study. Participants were asked structured questions based on the ICF framework. Digital recordings of the discussions were transcribed in full for linking to the ICF categories.
Results: Saturation of data was reached after 5 groups involving 21 participants. Participants identified as relevant 77.7% (n = 108/139) and 100% (n = 23/23) of the Comprehensive and Brief ICF Core Sets for traumatic brain injury, respectively. Additional ICF categories identified in 2 or more groups were: b180 “experience of self and time functions”; b250 “taste function”; b265 “touch function”; b530 “weight maintenance function”; b780 “sensation related to muscles and movement”; and d650 “caring for household objects”.
Conclusion: The study found additional ICF categories to consider and supports the use of the ICF Core Sets for traumatic brain injury in Australian adults in the community.
Lay abstract
Patients with traumatic brain injuries were invited to discuss the problems and barriers they faced after their injuries. Participants were living at home in Victoria, Australia, and provided their responses to the researchers for the “patient perspective”. The discussions were compared with the comprehensive and abbreviated lists of issues (known as the International Classification of Functioning, Disability and Health (ICF) Core Sets for Traumatic Brain Injury). These lists are intended to represent the lived experience of brain injury survivors. Overall, the current lists were found to be adequate for use in similar patient populations. Additional items to consider for the comprehensive list were also identified as potentially relevant. These included sensory or perception problems and difficulties with completing domestic tasks.
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References
Dewan MC, Rattani A, Gupta S, Baticulon RE, Hung Y-C, Punchak M, et al. Estimating the global incidence of traumatic brain injury. J Neurosurg 2019; 130: 1080.
AIHW A. Australia’s Health 2008. Canberra: Australian Institute of Health and Welfare Cat No Aus 99; 2008.
Pozzato I, Tate RL, Rosenkoetter U, Cameron ID. Epidemiology of hospitalised traumatic brain injury in the state of New South Wales, Australia: a population-based study. Aust N Z J Public Health 2019; 43: 382–388.
Cotrell V, Schulz R. The perspective of the patient with Alzheimer’s disease: a neglected dimension of dementia research. The Gerontologist 1993; 33: 205–211.
World Health Organization (WHO). ICF: International Classification of Functioning, Disability and Health. Geneva: World Health Organization; 2001.
Bickenbach J, Cieza A, Rauch A, Stucki G. ICF core sets: manual for clinical practice for the ICF research branch, in cooperation with the WHO collaborating centre for the family of international classifications in Germany (DIMDI). Cambridge; Hogrefe Publishing; 2012.
Laxe S, Zasler N, Selb M, Tate R, Tormos JM, Bernabeu M. Development of the International Classification of Functioning, Disability and Health core sets for traumatic brain injury: an international consensus process. Brain Inj 2013; 27: 379–387.
Bernabeu M, Laxe S, Lopez R, Stucki G, Ward A, Barnes M, et al. Developing core sets for persons with traumatic brain injury based on the international classification of functioning, disability, and health. Neurorehabil Neural Repair 2009; 23: 464–467.
Chung P, Yun SJ, Khan F. A comparison of participation outcome measures and the International Classification of Functioning, Disability and Health Core Sets for traumatic brain injury. J Rehabil Med 2014; 46: 108–116.
Stier-Jarmer M, Grill E, Muller M, Strobl R, Quittan M, Stucki G. Validation of the comprehensive ICF Core Set for patients in geriatric post-acute rehabilitation facilities. J Rehabil Med 2011; 43: 102–112.
Coenen M, Cieza A, Stamm TA, Amann E, Kollerits B, Stucki G. Validation of the International Classification of Functioning, Disability and Health (ICF) Core Set for rheumatoid arthritis from the patient perspective using focus groups. Arthrit Res Ther 2006; 8: R84.
Hieblinger R, Coenen M, Stucki G, Winkelmann A, Cieza A. Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients. Arthritis Res Ther 2009; 11: R67.
Glassel A, Coenen M, Kollerits B, Cieza A. Validation of the extended ICF core set for stroke from the patient perspective using focus groups. Disabil Rehabil 2012; 34: 157–166.
Sveen U, Ostensjo S, Laxe S, Soberg HL. Problems in functioning after a mild traumatic brain injury within the ICF framework: the patient perspective using focus groups. Disabil Rehabil 2012; 35: 749-757.
Pistarini C, Aiachini B, Coenen M, Pisoni C. Functioning and disability in traumatic brain injury: the Italian patient perspective in developing ICF Core Sets. Disabil Rehabil 2011; 33: 2333–2345.
Patton M. Qualitative evaluation and research methods. Newbury Park, CA: Sage; 1990.
Guest G, Bunce A, Johnson L. How many interviews are enough?: an experiment with data saturation and variability. Field Methods 2006; 18: 59–82.
Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005; 37: 212–218.
Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S, et al. Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med 2002; 34: 205–210.
McHugh ML. Interrater reliability: the kappa statistic. Biochem Med (Zagreb) 2012; 22: 276–282.
Schofield PW, Doty RL. Chapter 23 – the influence of head injury on olfactory and gustatory function. In: Doty RL, editor. Handbook of clinical neurology 164. The Netherlands; Elsevier: 2019, p. 409–429.
Hanks RA, Rapport LJ, Vangel S. Caregiving appraisal after traumatic brain injury: The effects of functional status, coping style, social support and family functioning. Neurorehabilitation 2007; 22: 43–52.
Chung P. Rehabilitation in traumatic brain injury [dissertation]. Melbourne: The University of Melbourne; 2016.
Chung P, Khan F, Judson R, Baguley IJ, Ng L. Validation of the International Classification of Functioning, Disability and Health (ICF) Core Sets for Traumatic Brain Injury from Australian community patient perspective. In: Accepted Abstracts from the International Brain Injury Association’s Eleventh World Congress on Brain Injury. Brain Inj 2016; 30: 481–817.
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