Self-reported Versus Physician-reported Severity of Chronic Hand Eczema: Concordance Analysis Based on Data from the German Chronic Hand Eczema Patient Long-Term Management Registry


  • Philipp Bentz Department of Occupational Dermatology, Dermatology clinic, Heidelberg University Hospital, Heidelberg, Germany
  • Christian Apfelbacher Institute of Social Medicine and Health Systems Research, Otto von Guericke University Magdeburg, Magdeburg, Germany
  • Wilhelm Akst Privat practice, Prüm (Eifel), Germany
  • Sonja Molin Division of Dermatology, Department of Medicine, Queen’s University, Kingston, Canada
  • Andrea Bauer Department of Dermatology, University Hospital Carl Gustav Carus, Technical University Dresden, Dresden, Germany
  • Peter Elsner Privat practice for dermatology and allergology, SRH Hospital Gera, Germany
  • Vera Mahler Paul-Ehrlich-Institut, Federal Institute for Vaccines and Biomedicines, Langen, Germany
  • Ralph von Kiedrowski Focus practice for chronic inflammatory dermatoses, skin cancer and allergology and study center CMS GmbH, Selters (Westerwald), Germany
  • Jochen Schmitt Centre for Evidence-based Healthcare, Medical Faculty Carl Gustav Carus, Technical University Dresden, Dresden, Germany
  • Elke Weisshaar Division of Occupational Dermatology, Dermatology clinic, Heidelberg University Hospital, Heidelberg, Germany



concordance, self-reported health, chronic hand eczema, patient-reported outcomes


Self-assessment of general health status has a significant influence on patient-related outcomes. The aims of this study were to investigate and compare the level of agreement between patients’ and dermatologists’ assessments of the severity of chronic hand eczema. From the German registry “German Chronic Hand Eczema Patient Long-Term Management Registry” (CARPE), 1,281 pairs of patients with chronic hand eczema and their dermatologists were included. Of these, 788 pairs served as a comparison 2 years after baseline. Concordance analyses found that complete concordance between patients’ and dermatologists’ assessments were 16.62% at baseline and 11.47% at follow-up. Overall, patients assessed their chronic eczema at baseline as more severe than did the dermatologists; whereas, at follow-up, patients assessed their condition as less severe than the dermatologists’ assessment. Bangdiwala’s B showed lower values of concordance for womens’ and older patients’ self-assessment with the dermatologists’ assessments. In conclusion, dermatologists should consider the patient’s perspective and the individual’s assessment of their chronic hand eczema in order to provide effective care in clinical practice.


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How to Cite

Bentz, P., Apfelbacher, C., Akst, W., Molin, S., Bauer, A., Elsner, P., Mahler, V., von Kiedrowski, R., Schmitt, J., & Weisshaar, E. (2023). Self-reported Versus Physician-reported Severity of Chronic Hand Eczema: Concordance Analysis Based on Data from the German Chronic Hand Eczema Patient Long-Term Management Registry. Acta Dermato-Venereologica, 103, adv00884.





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