Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24

Authors

  • Servando E. Marron
  • Manuel Gomez-Barrera
  • Lucía Tomas Aragones Department of Psychology, University of Zaragoza, Calle Pedro Cerbuna 12, ES-50009 Zaragoza, Spain
  • Ana Goni-Navarro
  • Eva Vilarrasa-Rull
  • Rosa María Diaz-Diaz
  • Francisco Javier Garcia-Latasa de Aranibar
  • Ricardo Campos-Rodenas
  • Victoria Fuentelsaz del Barrio
  • Yolanda Gilaberte-Calzada
  • Tamara Gracia-Cazaña
  • Anna María Morales-Callaghan
  • Sandra Ros-Abarca
  • María Blanca Madrid-Alvarez
  • Lluís Puig

DOI:

https://doi.org/10.2340/00015555-3905

Keywords:

hidradenitis suppurativa, quality of life, patient-reported outcome measure, psychometrics, validation

Abstract

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life -24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv­es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi­centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceiv­ed by patients.

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Published

2021-08-25

How to Cite

Marron, S. E., Gomez-Barrera, M., Tomas Aragones, L., Goni-Navarro, A., Vilarrasa-Rull, E., Diaz-Diaz, R. M., Garcia-Latasa de Aranibar, F. J., Campos-Rodenas, R., Fuentelsaz del Barrio, V., Gilaberte-Calzada, Y., Gracia-Cazaña, T., Morales-Callaghan, A. M., Ros-Abarca, S., Madrid-Alvarez, M. B., & Puig, L. (2021). Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24. Acta Dermato-Venereologica, 101(8), adv00529. https://doi.org/10.2340/00015555-3905