Illness Perception Regarding Early-stage Mycosis Fungoides among Dermatologists: A Multi-centre Cross-sectional Study




mycosis fungoides, illness perception, psychodermatology


Early-stage mycosis fungoides is a rare cutaneous T-cell lymphoma with a good prognosis. Data regarding patients’ illness perception of mycosis fungoides are accumulating. However, investigating the dermatologists’ viewpoint is also essential, as it shapes the therapeutic relationship and doctor–patient communication. The aim of this study was to investigate the aspects of dermatologists’ illness perception towards early-stage mycosis fungoides and the way they present it to patients. Twenty-five dermatology residents and 55 attending physicians from all Israeli dermatology departments and the community completed the study questionnaires online. Dermatologists viewed mycosis fungoides as a chronic disease, causing a moderate emotional burden. In contrast to previously published data regarding patients’ illness perception, dermatologists demonstrated dominancy in the notion that patients were able to control their disease. Most dermatologists thought that patients perceived mycosis fungoides as an indolent lymphoma that causes anxiety. Dermatologists used a high diversity of themes when presenting mycosis fungoides to patients. The differences between the residents’ and attending physicians’ perceptions were minimal. Dermatologists have a kaleidoscope of views regarding the way they perceive mycosis fungoides, the way they think patients perceive it, and the way they communicate with patients. Maintaining patient-centred communication enables dermatologists to identify these gaps and view mycosis fungoides from their patients’ perspective.


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Agar NS, Wedgeworth E, Crichton S, Mitchell TJ, Cox M, Ferreira S, et al. Survival outcomes and prognostic factors in mycosis fungoides/Sézary syndrome: validation of the revised International Society for Cutaneous Lymphomas/European Organisation for Research and Treatment of Cancer staging proposal. J Clin Oncol 2010; 28: 4730-4739. DOI:

Kim YH, Liu HL, Mraz-Gernhard S, Varghese A, Hoppe RT. Long-term outcome of 525 patients with mycosis fungoides and Sézary syndrome: clinical prognostic factors and risk for disease progression. Arch Dermatol 2003; 139: 857-866. DOI:

Quaglino P, Prince HM, Cowan R, Vermeer M, Papadavid E, Bagot M, et al. Treatment of early-stage mycosis fungoides: results from the PROspective Cutaneous Lymphoma International Prognostic Index (PROCLIPI) study. Br J Dermatol 2021; 184: 722-730. DOI:

Hack TF, Degner LF, Parker PA, Baile W, Brundage M, Bultz B, et al. The communication goals and needs of cancer patients: a review. Psychooncology 2005; 14: 831-847. DOI:

Segal O, Trumper N, Pavlotsky F, Goldzweig G, Barzilai A. Illness perception, coping, and quality of life in early-stage mycosis fungoides. An Bras Dermatol 2021; 96: 27-33. DOI:

Eder J, Kammerstätter M, Erhart F, Mairhofer-Muri D, Trautinger F. Illness perception in primary cutaneous T-cell lymphomas: what patients believe about their disease. Acta Derm Venereol 2016; 96: 381-385. DOI:

Ong LML, Visser MRM, Lammes FB, de Haes JCJM. Doctor-patient communication and cancer patients' quality of life and satisfaction. Patient Educ Couns 2000; 41: 145-156. DOI:

van Duijn H, Kuyvenhoven M, Welschen I, den Ouden H, Slootweg A, Verheij T. Patients' and doctors' views on respiratory tract symptoms. Scand J Prim Health Care 2002; 20: 201-202. DOI:

Scheuer E, Steurer J, Buddeberg C. Predictors of differences in symptom perception of older patients and their doctors. Fam Pract 2002; 19: 357-361. DOI:

Arat S, Lenaerts JL, de Langhe E, Verschueren P, Moons P, Vandenberghe J, et al. Illness representations of systemic lupus erythematosus and systemic sclerosis: a comparison of patients, their rheumatologists and their general practitioners. Lupus Sci Med 2017; 4: 1-8. DOI:

Whitehead K, Reuber M. Illness perceptions of neurologists and psychiatrists in relation to epilepsy and nonepileptic attack disorder. Seizure 2012; 21: 104-109. DOI:

Arat S, van den Zegel A, van Rillaer M, Moons P, Vandenberghe J, de Langhe E, et al. Development and preliminary evaluation of the validity and reliability of a revised illness perception questionnaire for healthcare professionals. BMC Nurs 2016; 15: 34. DOI:

Porkert S, Lehner-Baumgartner E, Valencak J, Knobler R, Riedl E, Jonak C. Patients' illness perception as a tool to improve individual disease management in primary cutaneous lymphomas. Acta Derm Venereol 2018; 98: 240-245. DOI:

Kremenchutzky M, Walt L. Perceptions of health status in multiple sclerosis patients and their doctors. Can J Neurol Sci 2013; 40: 210-218. DOI:

Jung HP, Wensing M, Grol R. What makes a good general practitioner: do patients and doctors have different views? Bri J Gen Pract 1997; 47: 805-809.

Sacristán JA, Dilla T, Díaz-Cerezo S, Gabás-Rivera C, Aceituno S, Lizán L. Patient-physician discrepancy in the perception of immune-mediated inflammatory diseases: rheumatoid arthritis, psoriatic arthritis and psoriasis. A qualitative systematic review of the literature. PLoS One 2020; 15: 1-16. DOI:

Husson O, Thong MSY, Mols F, Smilde TJ, Creemers GJ, van de Poll-Franse LV. Information provision and patient reported outcomes in patients with metastasized colorectal cancer: results from the profiles registry. J Palliat Med 2013; 16: 281-288. DOI:

Engin B, Keçici AS, Uzun AÖ, Yalçın M. Psychiatric comorbidity, depression, and anxiety levels and quality of life of the patients with mycosis fungoides. Dermatol Ther 2020; 33: e13922. DOI:

Graier T, Fink-Puches R, Porkert S, Lang R, Pöchlauer S, Ratzinger G, et al. Quality of life, anxiety, and depression in patients with early-stage mycosis fungoides and the effect of oral psoralen plus UV-A (PUVA) photochemotherapy on it. Front Med 2020; 7: 1-8. DOI:

Zanini C, Sarzi-Puttini P, Atzeni F, di Franco M, Rubinelli S. Doctors' insights into the patient perspective: a qualitative study in the field of chronic pain. BioMed Res Int 2014;2014: 514230. DOI:

Resnick S, Morrison RS. Physicians' perceptions of procedural pain and discomfort. J Palliat Med 2004; 7: 646-651. DOI:

Haldar M, Engebretsen E, Album D. Legitimating the illegitimate: how doctors manage their knowledge of the prestige of diseases. Health (London) 2016; 20: 559-577. DOI:

Album D, Westin S. Do diseases have a prestige hierarchy? A survey among physicians and medical students. Soc Sci Med 2008; 66: 182-188. DOI:

Album D, Johannessen LEF, Rasmussen EB. Stability and change in disease prestige: a comparative analysis of three surveys spanning a quarter of a century. Soc Sci Med 2017; 180: 45-51. DOI:



How to Cite

Segal, O., Goldzweig, G., Shapiro Bratt, I., Baum, S., Lyakhovitsky, A., & Barzilai, A. (2022). Illness Perception Regarding Early-stage Mycosis Fungoides among Dermatologists: A Multi-centre Cross-sectional Study. Acta Dermato-Venereologica, 102, adv00784.

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